Ok, so this post took a little longer in coming than I had originally intended. But last week was VBS and time just got away from me. Anywho, here we are.
Amy finally got ahold of the doctor's office and we received the remaining pathology results we had been waiting on. Turns out her mast cells were high, but not terribly. They were in the limits of an allergic reaction. So, her doctor is thinking it is not Mastocytosis. This is great news. However, we still have a long road ahead of us filled with learning.
As I'd mentioned before she has now been diagnosed with an allergy to soy as well as the milk protein. We also suspect that she may have an intolerance to gluten as well. Ugh. We've been monitoring her rash/hives, demeanor, and tummy issues (diaper fillings). We're not totally sure, but have a strong suspicion. So here we sit on the precipice of raising a child with allergies. Now I know that her allergies are minor in comparison to others' but it is still a lot for us to handle having never experienced it before firsthand. We are learning to research and read labels to ensure that she is not getting dairy or soy. We are also thinking and praying about the gluten, trying to decide if we cut that out as well. That is a huge undertaking so we are being sure to make as educated decision as possible. I'll update on it more.
In the meantime Amy, my heroine, spent the better part of last week on the phone arguing/pleading/discussing/talking with insurance regarding the special formula that the doctor prescribed for Stella. I'll keep it short, but suffice it to say it has been a difficult and frustrating journey and the insurance company was not much help at all. Luckily, late yesterday afternoon we received word that it was taken care of and we would be receiving our first shipment of formula next week. I have to give total credit to Amy for this all as she single-handedly took care of this last week. It was rough, but she was awesome.
So, that's that. Things seem to be settling down a bit on this adventure as we learn how to live with a child with allergies and work around conventional thinking when it comes to eating and meals. It's been very interesting and eye-opening though. We are all eating healthier as a result too, so that's a plus.
Thanks for all of your thoughts, prayers, and kind words along the way as we have dealt with this. It's been a long couple of months, but I think HE has finally brought us through it to the other side and we can now begin to breath again. Thank you.
All is well, learning, in Drosche Land.