"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11

Sunday, June 02, 2013


No, this post isn't about the military. Nor is it about a tiny action figure or the film franchise based on it.

Nope, I'm talking about the GI that stands for gastrointestinal. Not newly as exciting I know. But read on to find out.

See, Stella's been having some medical drama for the past few weeks. I've not blogged about it because we've been stressed over it and we've been so busy with usual May things that I just haven't gotten around to finding the time to sit and share. But here I am now.

See, a couple of months ago she began to break out in hives. All over. We freaked out. Turns out there isn't anything you can do other than to stockpile Benadryl. We had the blood allergy test done and it came back negative for everything. It's unrelated to her milk protein allergy so we were left speechless and wondering. Then a couple of weeks ago she had some serious trouble with diarrhea. See that's what I'm blogging about today, hives and diarrhea, adventures in Drosche Land come in all kinds. Anywho. Diarrhea. So we took her to the doctors to see what could be done about it because she was pretty miserable and we were at our wits' end.

Well more blood work was done and no answers were found. So, this past Thursday we took her to a GI specialist (see how it all fits in now?). We were totally expecting an answer related to am allergy. Maybe gluten? Soy? So knows. Something we could do something about. Turns out that wasn't the case. The doctor reviewed her entire life's medical issue and asked us tons of questions. He believes that she may have a genetic disorder called mastocytosis. I know what you're thinking, Amy and I thought the same thing too. Masto what? Well, in a nutshell, your body has mast cells that help fight infection and heal your body, they keep you healthy. But something you have too many and they get confused and misfire their histamines and group together and cause problems. Symptoms? Hives, check. Diarrhea, check. Prior allergic issues, check. Flushing of the face and neck randomly,check. These things, along with some other seemingly unrelated issued are what lead him to believe this.

The troublesome thing is that his mastocytosis is extremely rare. That and hearing the symptoms was like playing connect the dots with things we've been dealing with for the past year. Hmmmm?

There is no cure for it and treatment depends of the severity which is totally different for every patient. Nice. This Thursday she will have an endoscopy and colonoscopy to see what's going on inside. Regardless of diagnosis, these tests will give us an answer as to what the issue is. Invasive is not our first choice by far, but Amy and I feel that we must have answers. We're killing ourselves trying to figure it out.

It could be something else as well, we know, something like ulcers or colitis. But we shall see once Thursday comes. Until then, we are just enjoying the beginning to our summer. Praying trying not to worry. And enjoying the little blessing that turns one year old tomorrow! Her party was yesterday (post with pictures forthcoming) and it was awesome!

So, dear readers, keep us in your thoughts and prayers. For answers and best case scenarios. That's what we're praying for. That an peace of mind, patience, and faith. We know HE already had this no matter what, but it's sometimes hard to remember.

All is well, worried and praying, in Drosche Land.

- Posted using BlogPress from my iPad

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